Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Fatta Laura Maria; Povey Carol; Warberg Christine Kloster; Jenaro Cristina; Vicente Astrid; Primo Patricia García; Dale Ian; Scattoni Maria Luisa; Boilson Andrew Martin; Poustka Luise; Rasga Célia; Staines Anthony; Ebeling Hanna; Iskrov Georgi; Ciaramella Antonio; Kawa Rafal; Stefanov Rumen; Micai Martina; Rogé Bernadette; Parviainen Tarja; Saemundsen Evald; Diehm Robert; Tani Pekka; Fulceri Francesca; Canal-Bedia Ricardo; Leósdóttir Thora; Moilanen Irma; Guillon Quentin; Posada Manuel; Salvitti Tommaso; Schendel Diana; Budisteanu Magdalena; Monroy Maria Luisa; Yliherva Anneli; Gissler Mika; Flores Noelia; Charman Tony; Cramer Susanne; Sweeney Mary Rose
Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Fatta Laura Maria
Povey Carol
Warberg Christine Kloster
Jenaro Cristina
Vicente Astrid
Primo Patricia García
Dale Ian
Scattoni Maria Luisa
Boilson Andrew Martin
Poustka Luise
Rasga Célia
Staines Anthony
Ebeling Hanna
Iskrov Georgi
Ciaramella Antonio
Kawa Rafal
Stefanov Rumen
Micai Martina
Rogé Bernadette
Parviainen Tarja
Saemundsen Evald
Diehm Robert
Tani Pekka
Fulceri Francesca
Canal-Bedia Ricardo
Leósdóttir Thora
Moilanen Irma
Guillon Quentin
Posada Manuel
Salvitti Tommaso
Schendel Diana
Budisteanu Magdalena
Monroy Maria Luisa
Yliherva Anneli
Gissler Mika
Flores Noelia
Charman Tony
Cramer Susanne
Sweeney Mary Rose
FRONTIERS MEDIA SA
Julkaisun pysyvä osoite on:
https://urn.fi/URN:NBN:fi-fe2021093048086
https://urn.fi/URN:NBN:fi-fe2021093048086
Tiivistelmä
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups, <20% of responders knew an organization or clinician which has developed a way to monitor health, and prevent poor health, that works well for adults on the autism spectrum. The results point to means for better management of co-occurring conditions associated with autism in adulthood in order to reduce hospital admissions and potential areas of improvement in health and social services for autistic adults. Specifically, efforts should be focused on (1) professionals' education on risks for co-occurring conditions in autistic adults; (2) promoting preventive health behaviors; (3) making services user-friendly for autistic adults and their families; and (4) encouraging knowledge of good local services.
Kokoelmat
- Rinnakkaistallenteet [19207]