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Quality of life and late-effects among childhood brain tumor survivors: a mixed method analysis

Arola M; Gunn ME; Mört S; Riikonen P; Taskinen M; Möttönen M; Lähteenmäki PM

dc.contributor.authorArola M
dc.contributor.authorGunn ME
dc.contributor.authorMört S
dc.contributor.authorRiikonen P
dc.contributor.authorTaskinen M
dc.contributor.authorMöttönen M
dc.contributor.authorLähteenmäki PM
dc.date.accessioned2022-10-28T12:42:31Z
dc.date.available2022-10-28T12:42:31Z
dc.identifier.urihttps://www.utupub.fi/handle/10024/161482
dc.description.abstract<p>BackgroundReports on the quality of life (QOL) of childhood brain tumor (BT) survivors have been inconsistent. As cognitive limitations may restrict their participation in questionnaire-based studies, our aim was to evaluate in depth the QOL with a mixed-method analysis. <br /><br />MethodsThe 5-year survivors of childhood BTs born in 1975-2000 and alive in 2010 were identified via the Finnish Cancer Registry and treating clinics. Twenty-one survivors (32%) participated in a mixed-method analysis including 15D (a general health-related QOL questionnaire), the Beck Depression Inventory, and a qualitative semi-structured interview. <br /><br />ResultsBased on the 15D-questionnaire, the BT survivors had an impaired health-related QOL in several dimensions such as speech and usual activities. On the other hand, no difference was found in other dimensions such as distress or vitality. A majority (95%) of the survivors showed no increased risk for depression. The qualitative interview revealed that the most important aspects affecting the QOL of the survivors were positive mental growth, negative conceptions concerning illness, living one day at a time, age at diagnosis, time since diagnosis, social relationships, learning disabilities and limitations in vocational opportunities, limitations in independent life, and changed understanding of the term health'. <br /><br />ConclusionsChildhood BT survivors have heterogeneous attitudes on QOL. The survivors assess social aspects to be more important than functionality for their QOL. Social concerns should actively be brought up to offer support for those with significant social difficulties. Interventions for social difficulties should be more actively developed. Copyright (c) 2015 John Wiley & Sons, Ltd.<br /></p>
dc.language.isoen
dc.publisherWILEY-BLACKWELL
dc.titleQuality of life and late-effects among childhood brain tumor survivors: a mixed method analysis
dc.identifier.urnURN:NBN:fi-fe2021042715191
dc.relation.volume25
dc.contributor.organizationfi=kliinisen laitoksen yhteiset|en=Department of Clinical Medicine|
dc.contributor.organizationfi=lastentautioppi|en=Paediatrics and Adolescent Medicine|
dc.contributor.organizationfi=tyks, vsshp|en=tyks, vsshp|
dc.contributor.organization-code2607300
dc.contributor.organization-code2607313
dc.converis.publication-id3453352
dc.converis.urlhttps://research.utu.fi/converis/portal/Publication/3453352
dc.format.pagerange683
dc.format.pagerange677
dc.identifier.eissn1099-1611
dc.identifier.jour-issn1057-9249
dc.okm.affiliatedauthorLähteenmäki, Päivi
dc.okm.affiliatedauthorStorm, Erika
dc.okm.affiliatedauthorDataimport, tyks, vsshp
dc.okm.discipline3121 Internal medicineen_GB
dc.okm.discipline3122 Syöpätauditfi_FI
dc.okm.discipline3121 Sisätauditfi_FI
dc.okm.discipline3122 Cancersen_GB
dc.okm.internationalcopublicationnot an international co-publication
dc.okm.internationalityInternational publication
dc.okm.typeJournal article
dc.publisher.countryUnited Statesen_GB
dc.publisher.countryYhdysvallat (USA)fi_FI
dc.publisher.country-codeUS
dc.relation.doi10.1002/pon.3995
dc.relation.ispartofjournalPsycho-Oncology
dc.relation.issue6
dc.year.issued2016


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