An Unclear Question: Who Owns Patient Information? A Kantian Take on the Concept of Datenherrschaft
Kai Kimppa; Jani Koskinen
https://urn.fi/URN:NBN:fi-fe2021042716287
Tiivistelmä
Abstract. Patient information systems are critical instruments in modern
healthcare; thus, modern healthcare systems cannot function properly without them.
While there are countless varieties of information systems used in healthcare, there
is one overarching commonality among them – they all contain information about
patients. Different groups involved in healthcare have an interest in patients’
information for different reasons. However, in many countries, it remains unclear
who exactly owns the data. This issue thus needs to be resolved. As ethics is critical
in determining the justifiable owner of patient information, any legislative
solution to competing interests ought to be ethically well justified. In this
paper, we argue that an ethically acceptable formulation of the ownership of
patient data has already been suggested and that it can be further justified also
through the Kantian tradition.
Kokoelmat
- Rinnakkaistallenteet [19207]