Third-party data leaks on websites of medical condition support associations

dc.contributor.authorRauti, Sampsa
dc.contributor.authorCarlsson, Robin
dc.contributor.authorPuhtila, Panu
dc.contributor.authorHeino, Timi
dc.contributor.authorMäkilä, Tuomas
dc.contributor.authorLeppänen, Ville
dc.contributor.organizationfi=ohjelmistotekniikka|en=Software Engineering|
dc.contributor.organization-code1.2.246.10.2458963.20.71310837563
dc.contributor.organization-code2610302
dc.converis.publication-id508540384
dc.converis.urlhttps://research.utu.fi/converis/portal/Publication/508540384
dc.date.accessioned2026-01-27T09:57:42Z
dc.date.available2026-01-27T09:57:42Z
dc.description.abstract<p>The internet has become a primary source of health information for many people. For example, the websites of many medical condition support associations, meant for people suffering from various medical conditions, contain information on different medical conditions, treatments, and general health advice. However, accessing such information can be a serious privacy threat for the end user. In this article, we study the privacy of the websites of 18 Finnish medical condition support associations. The websites were analyzed to find leakages of sensitive personal data to third parties. Our investigation concludes that 88.9% of the websites leaked potentially sensitive personal data to third parties, usually private corporations offering web analytics tools such as Google Analytics. Furthermore, we discovered that users are not adequately informed about these data processing activities. We suggest several measures to alleviate third-party data leaks on websites handling sensitive personal data.<br></p>
dc.format.pagerange1
dc.format.pagerange16
dc.identifier.eissn2694-1015
dc.identifier.olddbid214355
dc.identifier.oldhandle10024/197373
dc.identifier.urihttps://www.utupub.fi/handle/11111/39184
dc.identifier.urlhttps://doi.org/10.20517/jsss.2024.15
dc.identifier.urnURN:NBN:fi-fe202601279307
dc.language.isoen
dc.okm.affiliatedauthorRauti, Sampsa
dc.okm.affiliatedauthorCarlsson, Robin
dc.okm.affiliatedauthorPuhtila, Panu
dc.okm.affiliatedauthorHeino, Timi
dc.okm.affiliatedauthorMäkilä, Tuomas
dc.okm.affiliatedauthorLeppänen, Ville
dc.okm.discipline113 Computer and information sciencesen_GB
dc.okm.discipline113 Tietojenkäsittely ja informaatiotieteetfi_FI
dc.okm.internationalcopublicationnot an international co-publication
dc.okm.internationalityInternational publication
dc.okm.typeA1 ScientificArticle
dc.publisherOAE Publishing Inc.
dc.publisher.countryUnited Statesen_GB
dc.publisher.countryYhdysvallat (USA)fi_FI
dc.publisher.country-codeUS
dc.relation.doi10.20517/jsss.2024.15
dc.relation.ispartofjournalJournal of Surveillance, Security and Safety
dc.relation.volume6
dc.source.identifierhttps://www.utupub.fi/handle/10024/197373
dc.titleThird-party data leaks on websites of medical condition support associations
dc.year.issued2025

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