Estimating the use of biological samples in Finnish biobanks and hospital collections

dc.contributor.authorTupasela, Aaro
dc.contributor.authorSoutherington, Tom
dc.contributor.authorMäkelä, Johanna
dc.contributor.authorKallio, Lila
dc.contributor.authorPerälä, Merja
dc.contributor.authorKosma, Veli-Matti
dc.contributor.authorMannermaa, Arto
dc.contributor.authorJokela, Tiina
dc.contributor.authorPitkänen, Kimmo
dc.contributor.authorKontro, Mika
dc.contributor.authorVesterinen, Tiina
dc.contributor.authorPunkka, Eero
dc.contributor.authorKnopp, Theresa
dc.contributor.authorRuddock, Minna
dc.contributor.authorSerpi, Raisa
dc.contributor.authorMoilanen, Anne-Mari
dc.contributor.authorViiri, Leena
dc.contributor.authorSiltanen, Sanna
dc.contributor.authorMakkonen, Enni
dc.contributor.authorIngalsuo, Päivi
dc.contributor.organizationfi=biolääketieteen laitos|en=Institute of Biomedicine|
dc.contributor.organizationfi=oikeustiede|en=Laws|
dc.contributor.organizationfi=tyks, vsshp|en=tyks, varha|
dc.contributor.organization-code1.2.246.10.2458963.20.53046050752
dc.contributor.organization-code1.2.246.10.2458963.20.77952289591
dc.converis.publication-id499250885
dc.converis.urlhttps://research.utu.fi/converis/portal/Publication/499250885
dc.date.accessioned2025-08-28T03:22:16Z
dc.date.available2025-08-28T03:22:16Z
dc.description.abstractFinland has steadily developed its biobanking infrastructures since the early 2010s. This article presents a systematic overview of the number of biological samples that have been provided for research since 2013 when the Finnish Biobank Act came into force. Using data from individual biobanks and from permits issued by Fimea (formerly Valvira), we present the most up-to-date and complete account of sample use at a national level. Between 2014 and 2023 a total of 1,474,881 samples were provided through 998 sample requests. A better understanding of the use of biological samples at the national level can help highlight the important impact biobanking has as an infrastructure for supporting research. We argue that developing standards can help in developing national biobanking strategies and identify areas where biobanking can be further developed. We also conclude that the ability to combine tissue samples and health data flexibly and efficiently is essential and needs to be secured also within the context of the European Health Data Space (EHDS).
dc.identifier.eissn1476-5438
dc.identifier.jour-issn1018-4813
dc.identifier.olddbid210586
dc.identifier.oldhandle10024/193613
dc.identifier.urihttps://www.utupub.fi/handle/11111/52744
dc.identifier.urlhttps://www.nature.com/articles/s41431-025-01906-w
dc.identifier.urnURN:NBN:fi-fe2025082792734
dc.language.isoen
dc.okm.affiliatedauthorSoutherington, Tom
dc.okm.affiliatedauthorKallio, Lila
dc.okm.affiliatedauthorPerälä, Merja
dc.okm.affiliatedauthorDataimport, tyks, vsshp
dc.okm.discipline3111 Biomedicineen_GB
dc.okm.discipline3111 Biolääketieteetfi_FI
dc.okm.internationalcopublicationnot an international co-publication
dc.okm.internationalityInternational publication
dc.okm.typeA1 ScientificArticle
dc.publisherSpringer Science and Business Media LLC
dc.publisher.countrySwitzerlanden_GB
dc.publisher.countrySveitsifi_FI
dc.publisher.country-codeCH
dc.publisher.placeLONDON
dc.relation.doi10.1038/s41431-025-01906-w
dc.relation.ispartofjournalEuropean Journal of Human Genetics
dc.source.identifierhttps://www.utupub.fi/handle/10024/193613
dc.titleEstimating the use of biological samples in Finnish biobanks and hospital collections
dc.year.issued2025

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