Estimating the use of biological samples in Finnish biobanks and hospital collections
Tupasela, Aaro; Southerington, Tom; Mäkelä, Johanna; Kallio, Lila; Perälä, Merja; Kosma, Veli-Matti; Mannermaa, Arto; Jokela, Tiina; Pitkänen, Kimmo; Kontro, Mika; Vesterinen, Tiina; Punkka, Eero; Knopp, Theresa; Ruddock, Minna; Serpi, Raisa; Moilanen, Anne-Mari; Viiri, Leena; Siltanen, Sanna; Makkonen, Enni; Ingalsuo, Päivi
Estimating the use of biological samples in Finnish biobanks and hospital collections
Tupasela, Aaro
Southerington, Tom
Mäkelä, Johanna
Kallio, Lila
Perälä, Merja
Kosma, Veli-Matti
Mannermaa, Arto
Jokela, Tiina
Pitkänen, Kimmo
Kontro, Mika
Vesterinen, Tiina
Punkka, Eero
Knopp, Theresa
Ruddock, Minna
Serpi, Raisa
Moilanen, Anne-Mari
Viiri, Leena
Siltanen, Sanna
Makkonen, Enni
Ingalsuo, Päivi
Springer Science and Business Media LLC
Julkaisun pysyvä osoite on:
https://urn.fi/URN:NBN:fi-fe2025082792734
https://urn.fi/URN:NBN:fi-fe2025082792734
Tiivistelmä
Finland has steadily developed its biobanking infrastructures since the early 2010s. This article presents a systematic overview of the number of biological samples that have been provided for research since 2013 when the Finnish Biobank Act came into force. Using data from individual biobanks and from permits issued by Fimea (formerly Valvira), we present the most up-to-date and complete account of sample use at a national level. Between 2014 and 2023 a total of 1,474,881 samples were provided through 998 sample requests. A better understanding of the use of biological samples at the national level can help highlight the important impact biobanking has as an infrastructure for supporting research. We argue that developing standards can help in developing national biobanking strategies and identify areas where biobanking can be further developed. We also conclude that the ability to combine tissue samples and health data flexibly and efficiently is essential and needs to be secured also within the context of the European Health Data Space (EHDS).
Kokoelmat
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